Little Hannah enters a brave new world
6:00am Wednesday 11th September 2013 in News
TINY Hannah Dewhurst has set off on a new adventure — her first day at school.
Proud mum Anne Dewhurst had feared she would have to make a uniform for her four-year-old daughter, who has the rare physical and developmental condition Cornelia de Lange Syndrome.
However, she managed to track down a petite version in an aged two to three size at Marks and Spencer.
So delighted parents Anne and husband Mark said goodbye to Hannah as she set off on the bus for her first day at Greenfold School, Farnworth.
Mrs Dewhurst said: “She came home very happy and very tired.”
Hannah’s condition means she cannot speak and does not have emotional reactions like other children, so it was difficult for her parents to know whether she was excited about her education milestone.
But, against expectations, Hannah has been able to make a friend with a boy she met at nursery and is now her classmate.
Mrs Dewhurst said: “They are inseparable and do everything together. We were led to believe Hannah wouldn’t have the ability to make friends. It is absolutely wonderful.”
The extra time Mrs Dewhurst has now that Hannah is in school has led her to plan writing a blog about her experiences with her daughter to help other parents. The idea came after she won a photoshoot with local photographer Janet Broughton and was asked to write an article for her website’s blog Her story has been viewed more than 1,700 times and led to other parents getting in touch.
Mrs Dewhurst, from Daisy Hill, said: “A couple of mums contacted me and said, ‘please write again because you are saying things we need to hear’.
“I wish I had had someone to tell me it is ‘ok to get upset and grieve and get angry, but get on with your life’.”
Mrs Dewhurst says she was “absolutely delighted and surprised” by the positive reaction to her article, which she describes as a cathartic process.
“It was absolutely from the heart, but it was quite painful at the start,” she said.
Now, she hopes to set up her own blog to tell people about her life with Hannah.
“It will be about the funny stuff as well because it is not all sad,” she said.
Meanwhile, the family is continuing to fund raise for The Legacy Rainbow House in Mawdsley, Ormskirk, which Hannah attends for invaluable therapy sessions.
Anyone who wants to help can donate via the website justgiving.com/ HannahsAppeal2013.
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