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Rare disease claims life of baby Tommy
11:29am Tuesday 1st May 2007
Comments (23)A BABY born with a fatal genetic condition has died at the age of three months.
Tommy D'Attorre was cradled by his devastated parent as he lost his battle for life in Derian House children's hospice.
He was suffering from a chronic form of muscle weakness called SMA (Spinal Muscular Atrophy), which has no cure.
The beautiful child with the hazel eyes brought heartbreak and love in equal measure for his parents, Ralph and Siobhain, and they knew that their time together would be short.
The couple were with Tommy at Derian House in Chorley when his condition began to deteriorate.
"He was having trouble with his breathing, and we were walking with him in the garden," explained his 43-year-old father, a business management consultant.
"We sat on a bench and we were both crying as we could see he was drifting away.
"But we held him and he died with a smile on his face."
The couple then got Siobhain's two children, Callum, aged 12 and six-year-old Mairead, and the family sat with him for a while as they said their goodbyes. They had been determined to have little Tommaso Peter at home with them in Hallbridge Gardens, off Crompton Way, after the devastating diagnosis of Spinal Muscular Atrophy robbed them of hope he would live a long and healthy life.
The condition is the most common single genetic cause of death in infancy, but the odds on Tommy being born with it were still 10,000 to one.
It occurs because of the combination of two rogue genes his parents unknowingly carried.
Today, his family were trying to come to terms with the loss of the baby whose movement was so limited but capacity for bringing love boundless.
"He was a very special child and we will never forget him," said Mr D'Attorre.
The funeral will be held at 10am on Tuesday, May 8, at St Osmund's RC Church, Breightmet.
Your Say YourThe Bolton News
pip, bolton says...
12:51pm Tue 1 May 07
pip, bolton says...
12:52pm Tue 1 May 07
graham, europe says...
1:19pm Tue 1 May 07
Sleep in Peace.
m in bromley cross, BX says...
4:37pm Tue 1 May 07
Norm Johnson, Scottsdale, Arizona says...
5:44pm Tue 1 May 07
Kerry, Bolton says...
7:06pm Tue 1 May 07
R, Bolton says...
8:25pm Tue 1 May 07
Lindsey, Bolton says...
10:36pm Tue 1 May 07
Bren, says...
11:15pm Tue 1 May 07
Kathryn (nee: Gleeson), Burlington, Canada says...
12:43am Wed 2 May 07
J huette, says...
1:31am Wed 2 May 07
Fly high little guy, Fly free of disease.
www.our-sma-angels.com/elizabeth/
Sheila, USA says...
4:17am Wed 2 May 07
Tommy's Dad, Bolton says...
7:31am Wed 2 May 07
Tommy's Dad, Bolton says...
7:46am Wed 2 May 07
Yes sir, yes sir, three bags full!
One for the master, one for the dame,
and one for little Tommy who lives down the lane... rest in peace Tommy, mummy and daddy love you very much.x
Paul Stallard, Teddington says...
9:17am Wed 2 May 07
All our love Paul, Jane, Jack and Charlie Stallard ****
maggie r, says...
12:37pm Wed 2 May 07
Gary Lovatt, Bolton says...
2:03pm Thu 3 May 07
We've followed your story with sadness. Hope you can find strength at this sad time, we're all thinking of you.
Maxine - ROT Mersey, Merseyside says...
2:47pm Thu 3 May 07
So sad to receive email about Baby Tommaso Peter.
Thinking of you and your family.
Maxine
Carole Cooper, Bolton says...
2:51pm Thu 3 May 07
I was really sorry to hear a few weeks ago that little Tommaso was poorly and my heart went out to you all ...
My thoughts and prayers are for you all
Aunty Anne, Reading says...
5:26pm Thu 3 May 07
Eternally bloom little one, you are an inspiration.
Lots of love from Aunty Anne, Uncle Jam and your cousins Adam, Danyal, Faris and Sami.
Circe Cox, California says...
8:07pm Thu 3 May 07
I am free, dont grieve for me
I took His hand when I heard him call,
I turned my back and left it all.
I can not stay another day,
to laugh, to love, to work, or play.
Tasks left undone must stay that way,
I found that peace at close of day.
If my parting has left a void,
then fill it now with remembered joy.
A friendship shared, a laugh, a kiss,
all these things, I too shall miss.
Be not burdened with of sorrow,
I wish you the sunshine of tomorrow.
I savored many friends,
good times, a loved ones touch.
Perhaps my time seemed all too brief
dont lengthen it now with undo grief.
Lift up your heart and share with me,
God wanted me now, he set me free.
Claire, Bill & Hollie, St Helens says...
6:17pm Tue 8 May 07
Ralph, Siobhain and children, we are so sad for your loss.
Bill, Claire & Hollie
FAMILY PHOTO: Ralph and Siobhain D'Attorre with baby Tommy and his sister and brother, Mairead and Callum
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Ian Upton, Bolton says...
12:36pm Tue 1 May 07
Ian & Helen